Learn More About TooShaky
Why TooShaky Exists
TooShaky exists because I needed information that didn't exist in one clear, practical place. After my Parkinson’s diagnosis — and later, a stroke — I learned that many of the most disruptive symptoms weren’t the ones people warned me about. Some were subtle. Some were misunderstood. Some were dismissed, even by patients themselves, simply because they didn’t know how to describe what they were experiencing or what questions to ask.People living with Parkinson’s are not incapable or unintelligent. But Parkinson’s — and stroke — can slow processing speed, affect memory, and make it harder to find words that once came easily.When information is presented in long, technical, journal-style explanations, people often spend more energy trying to decode what’s being said than actually learning from it. TooShaky was created to change that.
Who TooShaky is For
TooShaky is built for: People living with Parkinson's, caregivers , family members, and clinicians seeking patient-friendly supplemental education, and anyone trying to better understand how Parkinson's affects daily life.
What Makes TooShaky Different
TooShaky focuses on clarity, not complexity. Instead of overwhelming people with dense medical language, TooShaky uses short, focused educational clips and plain-language explanations that respect both intelligence and cognitive changes. Most resources are designed to be understood in under 2 minutes. The goal is not to oversimplify Parkinson's-it's to make information usable.
The weekly short-form video format allows people to:
Learn in small manageable pieces
Rewatch when needed
Absorb information at their own pace
Recognize symptoms they didn't realize were connected
This approach helps patients, care givers, and clinicians communicate more clearly-without making anyone feel rushed, talked down to, or left behind.
How These Resources Are Intended to Be Used
Does not replace medical care, it exists to support it- by helping people.
Resources were designed to be less overwhelming, to be shared, printed or used to prepare for appointments.
To help patients to put words to symptoms,
prepare better questions,
recognize changes sooner, &
to feel more confident during appointments.
Clinician note: Short-form education can reduce confusion and help patients describe symptoms more accurately during visits.
Advocacy & Transparency
TooShaky is an independent Parkinson's advocacy and education project created by Dawn Howard, Parkinson's Advocate & Neurological Health Educator.Content is informed by lived experience and publicly available educational materials form established Parkinson's organizations. Nothing on this site is intended as medical advice, diagnosis, or treatment.
Recognition & Features
In 2026, TooShaky content was selected to be featured in the Book Nook at the World Parkinson Congress (WPC), a global event bringing together patients, caregivers, clinicians, and researchers.Due to limited scheduling capacity, not all selected authors are included in Meet & Greet sessions. However, selected works are curated and displayed for attendees to explore as part of the official Congress experience.This recognition reflects the importance of accessible, real-life Parkinson’s education for both patients and caregivers.
© 2026 TooShaky
Disclaimer: This patient education resource was created by Dawn Howard, Parkinson’s Advocate & Neurological Health Educator, through TooShaky.org, to support individuals newly diagnosed with Parkinson’s disease. Content is informed by lived experience, patient education best practices, and information from established medical, nonprofit, and educational sources. Drafting, editing, and organizational support were assisted by ChatGPT (OpenAI) as a writing and language tool, under the direction and review of the author. Educational content and references are drawn from sources including, but not limited to: Parkinson’s Foundation, The Michael J. Fox Foundation for Parkinson’s Research, American Parkinson Disease Association (APDA), Davis Phinney Foundation, Mayo Clinic, Peer-reviewed medical literature and clinical education resources. This material is provided for informational and educational purposes only and is not intended to replace individualized medical advice, diagnosis, or treatment. Patients should discuss all medical questions and care decisions with their healthcare provider. TooShaky.org does not provide medical care and does not establish a clinician–patient relationship.